Stories

Steele Serramondi

Steele Serramondi’s Journey

Steele was on born on December 29, 2011, weighing eight pounds and coming three days early. We chose his name so we would forever be reminded of the Pilbara, where we lived for many wonderful years. Like most babies, Steele grew quickly, pu…

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edward_h

Edward Hooper

It was the night after our daughter’s third birthday, 20th May 2012. Our son Edward Hooper (heart kid) was ill with a cold which was becoming worse, so we raced him to the nearest hospital which was in Harvey, WA. The nurse that was on ca…

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emma3

Miracles can happen

This is the story of Christmas 2002 and the birth of our beautiful daughter Emma.  It’s told not to scare off new parents but to bring awareness of Heartkids.

Emma was born on the 20th December.  She was perfect and it was the most a…

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Chloe no scar

When Chloe’s broken heart was mended

With Chloe’s recent first birthday behind us, I have spent many moments lately thinking about her heart surgery.  Wow.  Heart surgery.  A time in my life that was such a blur and if it wasn’t for the scars on Chloe’s chest and tummy, …

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jayden

Update on Jaydan’s Story

Not a day goes by when HeartKids are not a part of our lives.

I last wrote Jaydan’s story when he turned 1, it was a big milestone in his life. As we get ready to celebrate his fourth birthday, I have spent some time reflecting on how …

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jaydan1

Jaydan’s Story

Diagnosis: Complex Congential Heart Disease – Pulmonary Atresia, VSD (large whole in the Heart), MAPCAS
DiGeorge Syndrome
Jaydan was born on 11/11/08. He looked perfect, but our bliss was short-lived. Jaydan was quickly taken away with br…

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xander1

Xander’s Story

During a routine antenatal appointment, I mentioned that unusually I hadn’t felt the baby move much the previous night. This one comment caused a chain reaction of events that not only will my husband and I will never forget, but that wil…

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story_Sharlize3

Sharlize Margaret Gillard

In December 2008 Sharlize Gillard launched herself into the world in the most dramatic way possible, gasping for breath and fighting for her life minute, by minute, by minute.  Seven hours after her birth our first born was rushed in the n…

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story_zach1

Zachariah’s Fight for Life

Imagine the joy of seeing your unborn baby at your 6 month scan.  Then the whispers of the sonographers start, then more people come in to do more scans.  When the doctor comes in you know something’s wrong.

“We’re having trouble…

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xavier

OUR MIRACLE BABY & HEARTKID, XAVIER

The birth of a premature and critically ill child was overwhelming and traumatic.
Watching our baby struggle for life brought inconceivable highs and lows and was an extremely difficult time for us all.

This is my story of our second ch…

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Western Australia